About AHCF

Who is the AHCF? A combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. The AHCF is a non-profit, tax exempt organization run by parents of children with AHC.

What is the mission of the AHCF? Our mission is to find the cause(s) of AHC and effective treatments or cures while providing support to the families and children with AHC.

What are the goals of the AHCF? The goals of the AHCF are to: promote research into the cause(s) of AHC; fund research into new treatments of, and ultimately a cure for, AHC; promote proper diagnosis; educate health care professionals, the public, and related organizations support the membership of the AHCF; provide support to families and children with AHC; develop an international support organization consisting of people and organizations who care about children with AHC; encourage the exchange of information worldwide; raise funds in support of these goals.

Is the AHCF a volunteer organization? The AHCF is run entirely by volunteers. Administrative costs are kept low because volunteers cover many of these costs themselves.

Are donations to the AHCF tax deductible? Yes. As a chartiable organization we are classified as a non-profit tax, exempt organization 501 (c) (3). Federal ID # is 38-3225425

Who runs the AHCF? Current officers of the AHCF are:
Richard George, President
Lynn Egan, Vice- President and Family Support
Laurie Pecchia, Secretary
Thomas P. Soltys, Treasurer
Carol Prunty, Assistant Treasurer
Sharon Ciccodiocola, Medical Liaison
Current members of the Board of Trustees:
Karen Yono (Atchoo) -Carol Presunka - Dr. Joe George -

Which doctors advise the AHCF? The AHCF has a medical advisory board consisting of physicians who have experience with the disorder. Click here for the advisory board roster.

Is the AHCF the only organization dedicated to AHC? The AHCF works in cooperation with two other organizations to promote our goals. They are:

Association Francaise pour l'hemiplegie alternante (AFHA)
Dominique Poncelin, President
24 rue des Peupliers 91630 Marolles en Hurepoix France
www.afha.org

Association Italiana per la Sindrome di Emiplegia Alternante
Rosaria Vavassori, President
Via Sernovella, 37 23878 Verderio Superiore (LECCO) Italy
www.aisea.org

Click here to see the history and current goals of the Italian Association, AISEA

(PowerPoint will only run in Internet Explorer).

The AFHA hosts a bulletin board. Everyone can subscribe. Families post their questions, concerns and ideas regarding AHC and their children. Go to: www.yahoo.com Click on ‘Groups’ on the left hand side under Connect. Type ‘AFHA’ in the box under 'Join a Group'. Follow the direction and subscribe.

Where can I get more information on the AHCF? For more information on AHCF, including membership, financial, or fundraising information, contact the AHCF at the addresses and numbers listed on the contacts page on this website.