Contacts for Medical Research:

Currently conducting DNA research.

Kathryn J. Swoboda, M.D. Assistant Professor, Neurology Adjunct
Assistant Professor, Pediatrics University of Utah School of Medicine
50 North Medical Drive, Rm 3R210, Salt Lake City, UT 84132
Phone: (801) 585-9717 Fax: (801) 588-3392
swoboda@genetics.utah.edu

Mark Wride, Clinical Research Coordinator
University of Utah, Department of Neurology
30 North 1900 East Rm. 3R413A, Salt Lake City, UT 84132
Phone - (801) 585-9717; Fax - (801) 581-4192
For DNA blood kits at mwride@genetics.utah.edu

Contacts for AHCF :

Richard George, President
11700 Merriman Road Livonia, Michigan 48150
toll free phone: (888) 557-5757 email: richardgeorge@ameritech.net

Lynn Egan, Vice-President and Family Support
239 Nevada Street Redwood City, California 94062
phone/fax: (650) 365-5798/toll free: (888)225-3353
email: LAEgan6@sbcglobal.net
Contact Lynn for new family information including the new family packet, medical articles, newsletters, news releases, or database information.

Carol Prunty, Assistant Treasurer
202 W. Wasson Rd. Amboy, IL 61310 phone: 815-857-3585
email: pruntys79@insightbb.com