• NEWS & PRESS

    Find AHCF in the news, press releases, newsletters, and media kits.

  • ABOUT AHCF

    See how it all started and where we are going.

  • EVENTS

    Check out our yearly educational events around the country.

  • FUNDRAISING

    Learn how you can make a difference for AHC families.

  • MEDICAL RESEARCH

    Latest studies, grants, and the medical teams racing for a cure.

  • LIVING WITH AHC

    Find help and hope living with Alternating Hemiplegia of Childhood.

<< Previous Next >>

Foundation Updates

Loss of an AHC Angel

Ryleigh and parentsIt is with heavy hearts that we share with you the loss of one of our young AHC angels, Ryleigh Hart, age 4.  Ryleigh passed away this past weekend.  We will share information about her service and other details as it is made available.   Please keep parents Becky and Austin Hart and their entire family in your prayers during this difficult and sad time. (posted with permission)

ATP1A3 Netherlands Symposium Update

‘Thank you to Dr Al George for representing us at the 3rd ATP1A3 symposium in the Netherlands and sharing this report of the meeting.  Dr GeorgeLunterenreport (more…)

Latest news from AHCF

Please enjoy the latest newsletter from AHCF August Newsletter 2014 (more…)

July Family Newsletter

 

FM 2014 Hands n BraceletsAs I reflect on the success of the family meeting, I am proud of how this meeting was truly amazing! I love reconnecting with families, meeting new families and am always humbled by your presence. The family meetings leave me feeling energized and always strengthen my commitment to the AHC Community. (more…)

Fundraisers

Dine & Dance to End AHC!

lisaRenee & Paul Hodes are holding a Dinner Dance Gala on November 7th in honor of their daughter Lisa and all the kids with AHC! (more…)

4th Annual Iowa Walk/Run for AHC!

Jackie and Connor

In Honor of Connor Corrin (17) and All Children and Their Families Affected by AHC.

Saturday September 27, 2014 (more…)

Flower Power for AHCF!

Flower powerWe get 50% of each sale!! Go to our page on the Flower Power Fundraising site  http://www.flowerpowerfundraising.com/campaign?campaign_id=19568 Get your bulbs this fall for spring show! (more…)

9th Annual Chicago Walk for AHC!

AHC Chicago WalkRyan&Kiley2WalkingThe Chicago Walk Team is ready for it’s ninth annual walk to raise money for research for AHCF! Come join us on September 21st!

(more…)

Renegades for Lisa Marie and AHC!

Lisafirstpitch4

Thank you to everyone who supported the Hodes’ Renegades fundraisers this year! Take a peak at Lisa throwing out the first pitch on AHC Awareness night! Lisa video

(more…)