Empowering Families
and Professionals
The AHCF provides opportunities for collaboration, the latest in AHC literature and research education, and resources to empower AHC families and healthcare professionals as they care for individuals with AHC.
What are you looking for?
Find helpful information on the various categories below.
How We’re Making a Difference
Donating to the AHC Foundation allows us to fund the foremost research to end AHC, providing hope to AHC families around the world.
Recent News & Updates
AHC Update at Lurie Childen’s Hospital
Our Medical Advisory Board members, Dr. Sho Yano and Dr. Ken Silver, did a joint presentation on May 4, 2024, on the latest information on AHC related to ATP1A3 at Lurie Children’s Hospital for the Neurology department. They did a great job introducing the complexities of ATP1A3 and educating the staff about AHC. One topic of note – the time it takes to diagnose an AHC patient now is measured in weeks vs. the years it took when Dr. Silver started 20 years ago.
Upcoming Events
Family Meeting 2025
Exciting news coming soon! We have big plans for our 2025 family meeting. It’s a great time to meet a committed, wonderful group of people determined to find a cure. You’ll also experience in person an amazing and supportive community and learn about the latest research. Follow us on Facebook for the latest news.
AHCF relies entirely on volunteers
Every hour donated has a lasting impact on the lives of those with AHC! There are many ways to show your support, find out how you can get involved today.
Learn about our Research
AHCF is at the forefront of advancing cutting edge research to find a treatment and a cure for this one in a million disorder.